The family praised the hospital staff in Lincoln for going above and beyond to make sure Jake was able to have a vital scan
The family of an autistic teenager with a heart condition have praised hospital staff in Lincoln for going above and beyond to make sure he was able to have a vital scan.He was born with a bicuspid aortic valve, which means his valve only has two cusps instead of three. This means he is at increased risk of the valve leaking or narrowing and may eventually need a valve replacement.
Jake’s autism means that he has to follow a strict routine, otherwise he becomes extremely distressed. His family and carers spend weeks and months preparing him for even the slightest change to his routine. “It was so distressing for Jake and everyone involved, but we needed for him to have an MRI scan and an echocardiogram to understand what was going on.”
Clive added: “I spoke to the team at Lincoln to see if there was any other option at all as I just could not see how we could prepare Jake for the journey and the new surroundings. Their response was simply amazing and blew me away.”
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