Heartbreaking
David Hutton will never forget the last time he tucked his six-year-old daughter Isla into bed for the last time. The sound of her laughter filled the air as they walked up and down the escalator – something the youngster loved to do.
She could also have up to 20 seizures a day. Sadly, young people with LQTS syndrome have an increased risk of sudden death. In order to look after his daughter, David, who lives in Ainsworth, gave up his job as a primary school teacher to become her full-time carer. “Life just feels so different,” he continued.“
During her life, Isla became the mascot for Thryv Therapeutics, a biopharmaceutical company developing inhibitors to treat various conditions, including long QT syndrome. Incredibly, the tot helped the company to secure more than $15m for drug research in the US, with the team using her as the driving force behind their work.
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