'Having to quantify how disabled and immobile you are in such excruciating detail is not only humiliating but dehumanising and that mental impact stays with you.' ✍️ Punteha van Terheyden writes for MetroOpinion
It has been over six months since I had to file more than 20 pages of soul-destroying explanations on why I should still receive PIP Then I had the anxiety of dealing with the Department of Work and Pensions and now I face my letterbox with trepidation, if at all.
PIP is designed to help with some of the extra costs incurred by the disabled, estimated by charity Scope to be an extra £583 a month on average.I only started claiming PIP in 2020, despite living with severe endometriosis for 20 years, and a chronic hip issue that impacts my mobility. Both issues cause me intense pain and affect both my ability to care for myself and to do things independently.
In my experience, many assessors are woefully inadequate in understanding what claimants go through on a day-to-day basis. Not for a lack of trying on my part either. I’ve had eight major surgeries since 2012 to manage my endometriosis and hip issues. I’ve lost an ovary, had more steroid injections than I can recall and still need to take fistfuls of hormones, opiates, and anti-inflammatories every day, just to function at this rubbish level.
The list of extra financial penalties I pay for being disabled is never-ending. The stress is eternal; the anxiety all consuming. Once you’ve submitted the forms too, there’s a significant backlog to process PIP reassessments, and the wait for PIP outcomes for disabled and chronically ill people like me is utterly inhumane.
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