Rob Burrow BBC documentary: 'I'm a prisoner in my own body'
"I need my parents for everything. It's like I'm their kid again."
"I'm a prisoner in my own body. The lights are on, but no-one's home. I think like you, but my mind doesn't work right. I can't move my body."His consultant, Dr Agam Jung, calls MND "an extremely cruel condition," explaining: "You may not be able to speak, you may not be able to swallow, you may not be able to breathe independently, you have weakness in your arms and legs. This leads to dependency and a reduced life span.
"How do I have the conversation around death?" asks Dr Jung. "It's there in the patient's mind. It's there in the family's mind. If I do not bring the topic up, that conversation will never happen."Alongside looking after their three young children and working as a physio in the NHS, Lindsey has had to take on the role of Rob's primary carer.Lindsey and Rob met as teenagers.
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