“I don’t just want to be seen as Ellie Simmonds: the dwarf”.
The documentary went down really well, it has educated not just the dwarfism community in the UK but worldwide on what it’s like for different people living with dwarfism and the drugs that are available to us or that will be. The BBC, and some other TV channels, are doing more and more documentaries educating viewers about the science behind disabilities. I went on a learning journey working on that programme.
“While I’m really proud to represent the dwarfism community and the disabled community, I don’t just want to be seen as Ellie Simmonds: the dwarf.” Going forward, I’d love to work on more documentaries. While I’m really proud to represent the dwarfism community and the disabled community, I don’t just want to be seen as Ellie Simmonds: the dwarf. If we want to continue going forward with representation, there are people out there with all different disabilities doing exactly the same things as everyone else and not just mixing with their own community. I don’t want to be a tick-box representing dwarfism.
Speaking of representation, many people really admire your work ethic and the joy you always seem to exude; it’s contagious. I’m curious whether you feel any pressure to be a shining example for the dwarfism community. How does that impact you, and how do you manage trauma in your life alongside having a public profile?, representing the disability and the dwarfism community. I am a happy person, but I also have my own insecurities and mood swings.
One week, not my last dance but the one before, I had a really tough experience with an interview, and it made me crumble. I tried to go out and dance and be strong, but when you get all those messages, especially, there was one from another woman with dwarfism who said, ‘I’m not voting for you, but you’re making my life worse, you’re making my insecurities heightened’. When you’re dealing with that behind closed doors, it can be a lot. I’m an emotional wreck sometimes.
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