A dad fears his five-year-old epileptic son will now die because he cannot afford to pay £1,000 a month for lifesaving cannabis.
Medical cannabis is a broad term used to describe oils, tablets and sprays that include cannabis and are made by pharmaceutical companies.
Having started on Bedrolite which costs £1,000 per month, they then switched to a cheaper medication for £600 a month called Celixir20 from Israel. At the start of this month the Hughes’ were told their private physician will no longer prescribe Celixir20 due to the Medicines and Healthcare products Regulatory Agency forcing him to take full liability for the drug.Now the Hughes’ are faced with the prospect of taking their son off the drug which has transformed his life because they can no longer afford the more expensive version.
‘Her mental health went downhill, she can’t stand seeing other children have seizures or go into hospitals. ‘Charlie is nearly walking, he’s started school but his learning could end as the seizures wipe his memory.The couple has already moved into a bungalow to help with Charlie’s access needs, getting a bigger mortgage and paying for private therapies.‘We have both been able to return to work thanks to the medical cannabis meaning Charlie can be in school.
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