Adolescents, youngadults with advanced heart disease show desire to take active role in medical care decisions umich jamanetworkopen
can't pump enough blood to meet the body's needs—along with 51 of their parents at Mott.
Many youth surveyed agreed with the statement"I should make the decision but strongly consider the physician's and my parents' opinions." More than half wanted to be involved in their end-of-life care decision making if critically ill. Cousino says research on patient communication and medical decision making was recently identified as a top priority in the field of palliative care in pediatric cardiology.
Senior author, Kurt Schumacher, M.D., a pediatric cardiologist at Mott, says the study has important implications for clinicians caring for children and young adults with serious heart disease.
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